This link explains why typical behavioral-based strategies don't work, because they rely on the individual having the capacity to bring the memory of that past experience and the prediction of a future experience into the present moment and apply that memory to what's happening at the moment:
http://216.109.125.130/search/cache?ei=UTF-8&p=fasd+memory+generalizations&fr=yfp-t-501&u=www.boysandgirlsaid.org/adoption/family_matters/pdfs/FM_Feature_Aug.pdf&w=fasd+memory+memories+generalizations+generalization+generalized&d=dkqoiXDuP_BS&icp=1&.intl=us
We're all so accustomed to the behaviorist methods of raising children--reward or punish. What on earth do you do with a child who responds unpredictably, at best, to either reward or punishment? And if he does respond to it, it has to be so tangible and immediate. It requires near-constant reminders, management, cueing, and it has to be done in just the right way to avoid meltdown or explosion.
The experts say change the environment, because you will not be able to change the child. I'm beginning to think there's some truth to this advice. On the other hand, we can't completely give up on trying to teach him "life skills" and functionality; we can't resign ourselves to the fact (at age nine) that he will never be able to live independently. I know it's a possibility. I'm not that naive. And therein lies the challenge! We have to balance these two competing realities: the knowledge that most of his problems can be traced back to neurological deficits rather than willfulness, and the equally important knowledge that he must improve his functionality over time if he ever hopes to live any sort of independent and successful life and think of himself as a capable and successful person.
http://216.109.125.130/search/cache?ei=UTF-8&p=fasd+memory+generalizations&fr=yfp-t-501&u=www.boysandgirlsaid.org/adoption/family_matters/pdfs/FM_Feature_Aug.pdf&w=fasd+memory+memories+generalizations+generalization+generalized&d=dkqoiXDuP_BS&icp=1&.intl=us
We're all so accustomed to the behaviorist methods of raising children--reward or punish. What on earth do you do with a child who responds unpredictably, at best, to either reward or punishment? And if he does respond to it, it has to be so tangible and immediate. It requires near-constant reminders, management, cueing, and it has to be done in just the right way to avoid meltdown or explosion.
The experts say change the environment, because you will not be able to change the child. I'm beginning to think there's some truth to this advice. On the other hand, we can't completely give up on trying to teach him "life skills" and functionality; we can't resign ourselves to the fact (at age nine) that he will never be able to live independently. I know it's a possibility. I'm not that naive. And therein lies the challenge! We have to balance these two competing realities: the knowledge that most of his problems can be traced back to neurological deficits rather than willfulness, and the equally important knowledge that he must improve his functionality over time if he ever hopes to live any sort of independent and successful life and think of himself as a capable and successful person.
2 comments:
I have some idea of how you're feeling Amelia. Our son, recently diagnosed with ARND, is almost twelve, and even though we knew this was a strong possibility when we adopted him from foster care as a baby it's really only the last few years that we've noticed how his reactions to the things that happen to him are just that bit different to other kids. We've concentrated on the academic problems, and just considered him a little immature, but now I'm also starting to suspect that as he gets older he will cope less and less with the demands of the world, and may never be able to live without our supports. I just hope he accepts that, as we are starting to.
I hope your son's difficulties remain mostly in the academic realm, Janine. Of course, you hope he'll do well there, or as well as he can, but the behavioral and emotional problems are incredibly difficult to overcome. But don't be discouraged by our situation! I hear of many adoptive parents (particularly of Russian adoptees) whose kids with FASD/ARND do NOT turn out to have terrible behavioral problems, just need some support, and are the kinds of kids who wouldn't hurt a fly. I'll try to add more resources to this blog as time permits. Thanks for stopping by!
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